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Congenital Anomalies
Worldwide, congenital anomalies cause approximately 295,000 deaths of children within their first 28 days of life. Every year, about 7.9 million children are born with life-threatening defects and 3.3 million children under the age of five5 die from congenital disabilities. According to the World Health Organization (WHO), congenital anomalies are structural or functional aberrations that occur during intrauterine life. The most common congenital disabilities include heart defects, cleft lip (palate), down syndrome and split spine (also known as spina bifida). Although 50% of all congenital disabilities do not have a single definite cause, common causes include genetic mutation, environmental factors and various other risk factors.

Geographic Disparities

Although congenital disabilities are widespread globally, they are particularly prevalent in developing countries. Developing countries account for 94% of worldwide congenital disabilities.

The level of income -both individual and national- in developing countries is a crucial factor that indirectly influences the high incidence of congenital disabilities. Low income affects the incidence of congenital disabilities in developing countries in the following ways:

  • Poor Access to Adequate Maternal Healthcare for Women During Pregnancy: About 99% of the global maternal mortality cases occur in low-income countries due to inadequate maternal care.
  • Poor Maternal Nutritional Condition: Deficiency of vitamin B can, for instance, escalate chances of birthing a baby with neural tube defects.
  • Excessive Prenatal Alcohol Consumption: Pregnant mothers’ consumption of alcohol increases their risks of giving birth to a child with Fetal Alcohol Syndrome (FAS). FAS is a total of the damage – both physical and mental – to an unborn child as a result of their mother’s alcohol consumption.
  • Presence of Other Infections: Some sexually transmitted diseases can transfer from a pregnant mother to her child. For example, syphilis during pregnancy accounts for an estimated 305 000 fetal and neonatal deaths annually. It also jeopardizes 215,000 infant lives due to congenital infections, prematurity or low-birth-weight.

How WHO is Taking Action

The World Health Organization has taken and implemented various measures to fight congenital anomalies. In the 2010 World Health Assembly, WHO took on a resolution encouraging its member states to fight against congenital anomalies by:

  • Raising awareness throughout governments and the public about congenital disabilities and the risk they impose on children’s lives
  • Developing congenital disabilities surveillance systems
  • Providing consistent support to children affected by congenital anomalies
  • Ensuring that children with disabilities have the same rights and equal treatment as children without disabilities
  • Assisting families whose children have congenital disabilities

In addition to the resolution, WHO designed a manual that showed illustrations and photographs of selected birth defects. The manual’s primary purpose was to foster further development of the surveillance system, especially in low-income countries.

The Global Strategy for Women’s and Children’s Health

In 2016, WHO went an extra mile and published the Global Strategy for Women’s, Children’s and Adolescents Health 2016-2030, an updated version of the Global Strategy for Women’s and Children’s Health devised five years prior. The Global Strategy’s grand theme was “Survive, Thrive, Transform.”

  • Survive: “Survive” encompassed various goals that the Global Strategy hoped to accomplish. These include ending preventable deaths, lowering maternal mortality rates and newborn deaths among others.
  • Thrive: The main target was promoting health and wellbeing by responding to the dietary needs of children, adolescents and pregnant & lactating women.
  • Transform: This objective’s primary goal was to create a safe and nurturing environment by terminating extreme poverty. Poverty one of the leading causes of congenital disabilities.

Results

Over the years, the World Health Organization’s relentless efforts in battling against congenital disabilities have made remarkable progress in alleviating the issue. For instance, the number of newborn deaths has plummeted from 5 million to 2.4 million between 1990 and 2019, thanks to the various innovations and programs put in place. Although the current state of affairs is far from ideal, past accomplishments lay the groundwork and identify clear steps for future progress.

Mbabazi Divine
Photo: Flickr

Cerebral_Palsy_United
The goal of nonprofit group United Cerebral Palsy is to provide a “life without limits” for people with disabilities. By working with its 100 affiliates, the organization is able to help people all over the world become more independent productive citizens. Founded in 1949 by a group of parents of children with cerebral palsy, United Cerebral Palsy evolved into an organization devoted to anyone with a disability.

United Cerebral Palsy does not focus on how a person acquired a disability; rather, they will reach out to all types of people, whether the disability is due to aging, accident or the person was born with an ailment. Some of the disabilities the group works with are cerebral palsy, Down syndrome, autism spectrum disorders, physical disabilities, and traumatic brain injury (TBI).

This organization is proud to claim affiliation with about 100 groups in its quest to aid the disabled. These affiliates are vital to the cause and provide services such as housing, therapy, assistive technology training, early intervention programs, individual and family support, social and recreation programs, community living, state and local referrals, as well as employment assistance and advocacy. Without the help of its affiliates, United Cerebral Palsy’s outreach would be severely limited.

By focusing on the future, United Cerebral Palsy will impact even more lives. The organization teams up with other groups to develop new technologies and methods for improving the lives of those with disabilities. For example, United Cerebral Palsy is working to ensure that children unable to use their vocal cords can still communicate with innovate new voice technology.

Another resource United Cerebral Palsy provides is just as important as new technology. The group acts as a support group for friends and family of people with disability and offers forums for people to discuss and ask questions about a disability affecting his or her family. United Cerebral Palsy has a branch in each state and affiliates around the world as no one with a disability need go without the independence and wellbeing that he or she deserves.

Mary Penn

Sources: United Cerebral Palsy, Charity Navigator
Photo: United Cerebral Palsy Cleveland