Climbing For Hemophilia Awareness
Hemophilia is a life-threatening and frequently disabling condition that cannot be cured. However, with correct treatment, hemophiliacs can live a normal life. Hemophilia is a serious threat in the majority of developing countries where patients lack access to proper treatment.
Chris Bombardier, a 27-year-old hemophiliac, is attempting to climb Mt. Aconcagua as a part of his Seven Summit Challenge to raise awareness of hemophilia. Bombardier was the first American hemophiliac to reach the summit of Kilimanjaro in June 2011. The remaining 6 summits include Mt. Aconcagua, Mt. Denali, Carstensz Pyramid, Mt. Elbrus, Vinson Massif and Mt. Everest. He is currently climbing Mt. Aconcagua in Argentina, which is approximately 22,847 miles high. He started the climb on Tuesday, January 29th with 2 guides and 8 other climbers.
Bombardier is a board member of Save One Life, an international non-profit that aids impoverished hemophiliacs in developing countries. All money that Bombardier raises through his climbs will go to Save One Life.
Bombardier hopes that his climbs will increase hemophilia awareness: “Most people in the States don’t even know about hemophilia; think about how little is known worldwide. I think having someone with hemophilia pushing the limits is a cool story in itself, but I hope it raises awareness of the discrepancy in treatment,” Bombardier said.
Bombardier’s Seven Summit Challenge is crucial for raising awareness about the existence of hemophilia in developing countries where therapy and factor concentrations are often unavailable. Factor concentrations are preparations that are injected into a hemophiliac’s vein to replace the missing blood clotting factors.
Only a few developing countries have fractionation facilities or have made concentrates available. Problematically, approximately 80% of patients with severe hemophilia (PWH) live in developing countries. PWH patients denied access to factor concentrates will have five damaged joints by the age of 20. Damaged joints limit physical movement and thereby prevent normal participation in society.
In addition to factor concentrations, PWH patients should participate in physiotherapy and rehabilitation which help prevent disabilities that prohibit normal social involvement. Physiotherapy and rehabilitation procedures include muscle strengthening exercises, exercises that maintain or increase range of motion, training proprioception and coordination, management of pain, and orthotics.
Facilities must be formed in developing countries that provide access to educational materials and trainers in order to educate local areas about the proper treatment for those diagnosed with hemophilia or PWH. Hopefully, Bombardier’s Seven Summit Challenge will raise the money and awareness needed to tackle this challenge so that patients with hemophilia or PWH can enjoy a normal life.
– Kasey Beduhn
Sources: Europe PubMed Central, Europe PubMed Central, PRWeb, Adventures of a Hemophiliac
Photo: Adventures of a Hemophiliac